Thrusts of the Foundation |
- Promote and sustain the Philippine NBS Program aimed generally at preventing mental health and death.
- Undertake and support researches & related activities on NBS developments.
- Provide assistance to study groups organized primarily for the early detection & correction of inherited metabolic disorders & congenital anomalies.
- Document & preserve data on NBS and birth defects through statistical bank and registries.
- Develop and conduct training programs/workshops to help promote and sustain the NBS Program for: health care professionals (medical and allied medical), and families and general public.
- Develop, produce, publish and sell educational materials (for mainstream and digital media) that will sustain the promotion of the Philippine NBS program.
- Raise fund for the implementation and documentation of the programs and data aimed at preventing mental retardation and death.
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- Newborn Screening TVUP Series. A total of 52 episodes on newborn screening is expected to be produced by end of 2021 in coordination with the Newborn Screening Reference Center. The episodes will feature discussion about disorders, how its being treated and managed with experts and parents.
- Baby book in discussion with the Newborn Screening Reference Center.
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- 13th Asia Pacific Conference on Human Genetics 2019, November 7-9 2019 Makati Shangri-La Philippines. http://www.apchg2019.org.
PROGRAM BOOK
PROCEEDINGS
- 17th Newborn Screening Convention, October 9 - 10 2018, PICC Reception Hall, Philippines.
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CARMENCITA PADILLA, President
CARMELITA DOMINGO, Chair
LORNA ABAD, Corporate Secretary
ALMA ENRIQUEZ, Treasurer
CORAZON ALMIRANTE, Member
LETICIA BUENALUZ, Member
MANUEL FERRERIA, Member
DELILA LOJO, Member |
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