An orientation on the Nutritional Management of Screened Newborns with Inborn Errors of Metabolism, and a Supply Management Workshop for follow-up nurses were held on August 19-22, 2024 at the Widus Hotel, Clark Freeport Zone, Pampanga.
The event was attended by physicians, nurses, midwives, and nutritionist-dietitians from selected government and private healthcare facilities and provincial and city NBS coordinators. Representatives from the Newborn Screening Reference Center (NSRC), Center for Human Genetics Services (CHGS), Newborn Screening Center Central Luzon (NSCCL), Newborn Screening Continuity Clinics (NBSCC), Central Luzon Center for Health Development, also attended the event.
To boost awareness and competency among healthcare professionals in Region 3, specifically nutritionist-dietitians and NBS coordinators from various public and private health facilities, the workshop focused on enhancing their knowledge and skills on the nutritional management of inborn errors of metabolism (IEM) in screened newborns.
The initiative aimed to improve newborn screening services and ensure better health outcomes in Central Luzon. The workshop concluded with hands-on computation sessions led by the CHGS team, aimed at enhancing skills in the nutritional management of prevalent IEMs, including Phenylketonuria (PKU), Maple Syrup Urine Disease (MSUD), Glutaric Aciduria Type 1 (GA1), and Fatty Acid Oxidation Disorders (FAOD). Participants collaborated in groups, fostering a multidisciplinary approach to care.
In addition, workshops on supply management of expanded newborn screening medicines, medical foods, and orphan products gathered follow-up nurses from the NSCCL and NBSCCs. The primary aim was to equip participants with essential skills for effectively managing supplies that impact the efficient flow of goods, inventory, distribution, and utilization. Through educational sessions, attendees learned the best practices for annual forecasting and procurement of NBS-related goods, ensuring timely access for patients.
The workshop also included a comprehensive overview of a database utilized in Region 3, designed to support follow-up nurses in their roles.Overall, the events enhanced the participants’ understanding of supply management principles, promoting better patient care and resource allocation.
Resource persons were Dr. Christine Mae S. Avila, Dr. Mary Erika V. Orteza, Jeanne Ruth U. Basas, Catherine Kaye B. Erestain, Roxanne Janica E. Merencilla, Kevina Mariz M. Dajoyag, and Paulynne Marie M. Santos, all affiliated with the CHGS.
JLCanlas
